Community involvement
Our community is at the heart of everything we do. Dedicated to actively engaging with individuals affected by MS, including people with MS, their family, healthcare professionals, and advocacy groups, we listen to your needs, values, and preferences to better understand your challenges and develop research-driven solutions to address them.
Stakeholder Reference Group
Our Stakeholder Reference Group, established in 2019, comprises people with MS, health professionals, and researchers. The group plays a crucial role in our research by providing expertise to inform and guide our projects. By representing the voice of people with MS and the broader MS community, the Stakeholder Reference Group ensures that the values and perspectives of people with MS remain at the heart of our research.
Basil Merendino
Person with MS
Cindy Miller
Person with MS
Michelle Evans
Person with MS
Vanessa Baker
Person with MS
Emma
Person with MS
Dr Lisa Grech
Clinical Psychologist
MS Researcher
Person with MS
Misty Reinkowsky
Accredited Practising Dietitian
Senior MSWA Dietitian
Professor Allan Kermode
Neurologist
Cassandra Latouche
Senior Speech Pathologist
Challis Wilson
MS nurse
Lived Experience Advisory Panel
Established in 2025, our Lived Experience Advisory Panel is a group of people living with MS and family members of people with MS. The panel members provide their personal expertise to help share our researchh project to test the effectiveness of our digital nutrition education program, Eating Well with MS. The panels members provide guidance on the design of the project, the content of the program, the associated study materials, recruitment strategies and how best to share our findings with the MS community. The Lived Experience Advisory Panel ensures that our research project meets the values and needs of people with MS and the broader MS community.
Basil Merendino
Co-Chair
Cindy Miller
Co-Chair
Jody Cypelt
Harpreet Dhingra
Christine P
Martin Skoneczko
Mia Poposka
Rachel Burns
Research participation
Get involved in our research to help advance our understanding of the relationship between diet and MS. Your involvement helps us uncover new insights and develop evidence-based resources to improve the quality of life for people with MS.
Community updates
Check out our annual community updates for an overview of our research activities.
